Sunday, March 27, 2011

Puree is a French word

Feeding our children is something we all take for granted. They sip or bite and swallow without much thought. But when you have a neuromuscular disorder, chewing and biting are an issue. Teaching a feeding technique that provides nutrition to our little boy friend has become an important goal for us. One of my dear Sagamore friends gave me a Target card for our African family so I went straight away to buy a  blender.

Momma N understood quickly how to puree a can of Chef Boyardee and there were lots of happy sounds from Little E as we fed him the orange mess.
The best part was he swallowed every bit. The hardest part was we still have to hold his jaw and it takes a while to get it all in. Little E is happy to have the attention, but on a busy morning, I expect he only will get half fed.
Also,  I had my best buddy, Will outside playing with the rest of the gang so we were undisturbed.
Once the kids came flyin' in for water, Momma N and I were covered in orange puree.
Picked up lots of Pediasure to supplement the calories and he does seem to be growing.
Everyone is consistently laughing more, which must be a sign from heaven that these guys are gonna make it.

Will doin his thing










Gotta hand it to Will, he knows how to make fast friends. He brought all the boys baseball caps and taught them how to putt golfballs in the greasy parking lot. He was able to keep his eye on baby C and 3 year old L while simultaneously doing several sports lessons at once. He truly is one of my best friends. I admire him so much. I guess he became a multi tasker by trying to keep up with his parents and sisters who never sleep and are maniacs most of the time.






Will is a 13 year old artist, film maker, musician, great friend and a wonderful son. When you meet him, he will tell you being a teenage boy is not so easy. The world has a lot of expectations and pressures. But when I watched him leading these children with compassion and care, I knew he was building confidence in a way no one can teach.

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